Question by : NEW studies, medicines or treatments for interstitial cystitis?
I’m 18 years old. I was diagnosed with Interstitial Cystitis in 2009. I’ve had kindey problems, such as stones & infections since i was 9 years old. Also been diagnosed with several other things that go along with I.C. I’ve tried so many different things, trying to find something to get rid of the pain. My flair up started August of 2011 and has not stopped since. I’ve been on Elavil, Elmiron, and several other normal medicines that are prescribed. I’ve had bladder treatments, 2 different types of the normal ones that are done. I’ve had a bladder distention. No help at all. They did find that my bladder only held 1/7 of the normal bladder & that when they stretched my bladder, all it did was crack & bleed. I’ve also done pelvic floor rehab. I’ve been on the diet for over 7 months now. & i do keep myself very strict with it.
Pretty much I have done everything that is “normally” done. I know other options are bladder reconstruction or removal. But I’m 18 years old, & thats not something that I would even consider at this point. I want to know if there is other options.Other treatments. Other medicines. New trials. something. I’m pretty much willing to try anything at this point. Most everything my doctor (which is a I.C. specialist) wants to try, contradicts with something else I am taking or something else I’ve been diagnosed with. Its a huge problem. I have kidney stones on a regular basis, sometimes passing them weekly. I’ve had several surgeries to bust them up. They removed 9 out of one kidney in one surgery. Also diagnosed with IBS (irritable bowel syndrome). Some medicines cause constipation, therefore I have to take another medicine to reverse that. Also diagnosed with Dysautonomia, Taking Elavil flairs this up big time. Also diagnosed with a disease that is similar to Lupus.
There is just so much going on. I would like to find a doctor that can treat all of this. Because from my research this all goes together and is common together. Me going to different specialist for each thing is not working. They do not work together. One perscribes one thing, next one has to change that so they can perscribe whatever. Me & my mom have talked about trying to find a specialist for everything, but have no clue where to find one or how to.
can anyone tell me some new studies for I.C. or new medicines or new treatments. And a doctor that specializes in everything I have. Please. Any info will help
Best answer:
Answer by tod m
Most stones are calcium. vinegar dissolves calcium.
try Italian salad dressing, pickled vegetables or citrus fruit.
Filter your drinking water.
Kidney problems from diabetes, avoid sugar.
Add your own answer in the comments!


